Resources for Patients with Chronic Kidney Disease or CKD

You can live and live well despite having Chronic Kidney Disease or CKD. Stay healthy by learning as much as you can about kidneys and kidney disease. Here are a few resources to get you started.

Understanding CKD and Kidney Health

American Association of Kidney Patients (AAKP)	1-800-749-2257	AAKP.org
American Kidney Fund	1-800-638-8299	KidneyFund.org
Kidney School	1-608-833-8033	KidneySchool.org
Life Options	1-800 468-7777	Lifeoptions.org
National Kidney Foundation (NKF)	1-800-622-9010	Kidney.org
National Kidney Disease Education Program	1-800-860-8747	NKDEP.NIH.gov
Polycystic Kidney Disease Foundation (PKD)	1-800-753.2873	PKDCure.org

Understanding Dialysis Options

Home Dialysis Central	1-608-833-8033	HomeDialysisCentral.org
Life Options	1-800-468-7777	LifeOptions.org
Medicare	1-800-633-4227	Medicare.gov

Understanding Transplant Options

National Living Donor Assistance Center	1-888-870-5002	LivingDonorAssistance.org
Transplant Living	1-888-894-6361	TransplantLiving.org
United Network Organ Sharing (UNOS)	1-888-894-6361	UNOS.org

Understanding Active Medical Management without Dialysis and Mental Health

Get Palliative Care	None	GetPalliativeCare.org
Renal Support Network	1-866-903-1728	RSNHope.org
The Conversation Project	None	TheConversationProject.org
988 Suicide & Crisis Lifeline	988	988LifeLine.org

Support for Families and Caregivers

Caregiver Action Network	1-202-454-3970	CareGiverAction.org
Family Caregiver Alliance	1-800-445-8106	CareGiver.org

Advance Directives

Caring Info: Advance Directive Form for Texas		Caring Info
Texas Health and Human Services: Advance Directives		Texas Health and Human Services
PREPARE™ for your care: Texas PREPARE Advance Directive		Texas PREPARE Advance Directive

Finances and Staying Employed

Americans with Disabilities Act	1-800-514-0301	ADA.gov
Centers for Medicare and Medicaid Services	1-800-MEDICARE	CMS.gov
Family and Medical Leave Act	1-866-4-USWAGE	DOL.gov/whd/fmla
HealthInsurance.org	1-844-337-4826	HealthInsurance.org
Social Security Work Incentives Improvement Programs	1-800-772-1213	SSA.gov

Organ Donation

Donate Life Texas	None	DonateLifeTexas.org
National Kidney Foundation (NKF) Living Donor – The Big Ask \| The Big Give	1-855-NKF-CARES	Kidney.org

Clinical Research Trials

Renal Disease Research	214-366-6060	renaldiseaseresearch.com