Resources for Patients with Chronic Kidney Disease or CKD

You can live and live well despite having Chronic Kidney Disease or CKD.  Stay healthy by learning as much as you can about kidneys and kidney disease.  Here are a few resources to get you started.

Understanding CKD and Kidney Health

American Association of Kidney Patients (AAKP) 1-800-749-2257
American Kidney Fund 1-800-638-8299
Kidney School 1-608-833-8033
Life Options 1-800 468-7777
National Kidney Foundation (NKF) 1-800-622-9010
National Kidney Disease Education Program 1-800-860-8747
Polycystic Kidney Disease Foundation (PKD) 1-800-753.2873


Understanding Dialysis Options


Understanding Transplant Options

National Living Donor Assistance Center 1-888-870-5002
Transplant Living 1-888-894-6361
United Network Organ Sharing (UNOS) 1-888-894-6361


Understanding Active Medical Management without Dialysis and Mental Health

Get Palliative Care None
Renal Support Network 1-866-903-1728
The Conversation Project None
988 Suicide & Crisis Lifeline 988


Support for Families and Caregivers

Caregiver Action Network 1-202-454-3970
Family Caregiver Alliance 1-800-445-8106


Finances and Staying Employed

Americans with Disabilities Act 1-800-514-0301
Centers for Medicare and Medicaid Services 1-800-MEDICARE
Family and Medical Leave Act 1-866-4-USWAGE 1-844-337-4826
Social Security Work Incentives Improvement Programs 1-800-772-1213


Organ Donation

Donate Life Texas None
National Kidney Foundation (NKF) Living Donor – The Big Ask
| The Big Give


Clinical Research Trials

Renal Disease Research 214-366-6060