Resources for Patients with Chronic Kidney Disease or CKD

You can live and live well despite having Chronic Kidney Disease or CKD.  Stay healthy by learning as much as you can about kidneys and kidney disease.  Here are a few resources to get you started.

Understanding CKD and Kidney Health

American Association of Kidney Patients (AAKP) 1-800-749-2257 AAKP.org
American Kidney Fund 1-800-638-8299 KidneyFund.org
Kidney School 1-608-833-8033 KidneySchool.org
Life Options 1-800 468-7777 Lifeoptions.org
National Kidney Foundation (NKF) 1-800-622-9010 Kidney.org
National Kidney Disease Education Program 1-800-860-8747 NKDEP.NIH.gov
Polycystic Kidney Disease Foundation (PKD) 1-800-753.2873 PKDCure.org

 

Understanding Dialysis Options

 

Understanding Transplant Options

National Living Donor Assistance Center 1-888-870-5002 LivingDonorAssistance.org
Transplant Living 1-888-894-6361 TransplantLiving.org
United Network Organ Sharing (UNOS) 1-888-894-6361 UNOS.org

 

Understanding Active Medical Management without Dialysis and Mental Health

Get Palliative Care None GetPalliativeCare.org
Renal Support Network 1-866-903-1728 RSNHope.org
The Conversation Project None TheConversationProject.org
988 Suicide & Crisis Lifeline 988 988LifeLine.org

 

Support for Families and Caregivers

Caregiver Action Network 1-202-454-3970 CareGiverAction.org
Family Caregiver Alliance 1-800-445-8106 CareGiver.org

 

Finances and Staying Employed

Americans with Disabilities Act 1-800-514-0301 ADA.gov
Centers for Medicare and Medicaid Services 1-800-MEDICARE CMS.gov
Family and Medical Leave Act 1-866-4-USWAGE DOL.gov/whd/fmla
HealthInsurance.org 1-844-337-4826 HealthInsurance.org
Social Security Work Incentives Improvement Programs 1-800-772-1213 SSA.gov

 

Organ Donation

Donate Life Texas None DonateLifeTexas.org
National Kidney Foundation (NKF) Living Donor – The Big Ask
| The Big Give
1-855-NKF-CARES Kidney.org

 

Clinical Research Trials

Renal Disease Research 214-366-6060 renaldiseaseresearch.com